Speaking of dietary infractions... I am feeling a little frustrated with this whole thing. I am not liking the answers I am receiving to the questions I am asking. I am basically being told by other parents that this certainly has to be 100%- all or nothing. I just don't understand. I need to do more research into what exactly happens in the body, but it's my understanding that PERHAPS she may not be able to digest certain foods properly- in this case we are removing gluten and casein to see if there's an improvement. What apparently happens- maybe in her case, maybe not, but certainly in some other children's cases- is that these undigested food particles/proteins then can enter the bloodstream and somehow are turned into toxins and actually morphine-like chemicals?? I don't know, something like that. So these morphine-like chemicals can cause all sorts of issues. So here's my thinking.... if you have 99% less gluten and casein than you were consuming before... wouldn't there be 99% less of the toxins in your body than were there before?? So WHY does it have to be all or nothing? I ask this because I am doing the best I can- but as I've said before, I am not Superwoman, and my poor kid is FOUR years old. Today, for instance, I received a call from her Little Gym teacher during summer camp, that she was eating goldfish crackers off of the floor and they didn't know what to do. I talked to her about this when I picked her up, and she said "I had my pretzels, Mommy... but I just REALLY wanted some goldfish crackers like the other kids." What am I supposed to do with that?? I can't be with her 24/7- and she has self-regulation difficulties as it is, plus she is FOUR- how can I expect her to be perfect all the time? I can't. We are doing the best we can. So I'm getting all sorts of advice about how to enforce it... but if you don't know my kid... let me tell you, if she wants something, SHE IS GOING TO FIND A WAY. So I'm frustrated. If this has to be all or nothing... well, then it's going to have to be nothing. That's how I feel today. I'm not stopping... I just want someone to tell me that all of this is NOT for nothing. That it's GOING to help, even if she eats a few goldfish crackers off the floor (gross, but whatever).
I also feel proud today. So proud of how well my sweet girl has been doing. So we've had a little setback and we don't know why. All summer she has been going to Little Gym camp- and this is the first day they have said to me, (today was her last day) "She had a rough day." So guess what?? That is THIRTEEN good days, and ONE rough day. I'll take it. :)
Did you ever get the other results back for other foods she might be sensitive too? It could very well be that she's sensitive to soy, corn, or rice that's keeping her from seeing great results? I know it's frustrating, but another thing to think about is that there might be a hidden ingredient in something that you aren't realizing. Also, from what I understand about the GFCF working is that it's not just about what you take out of the diet, but eating nourishing foods to make up for the previous damage. However, getting a 4 year old to eat fermented foods (like they say will heal the damage) is probably a feat in itself! Although with such a good eater like Olivia she might surprise you! How much support is the Dr. giving you with this tricky diet? I would think she would be able to help you understand the complexity of it better than anyone.
ReplyDeleteNo other results yet... we've had to split up the testing due to cost. We have had all of the standard bloodwork done and results are in, but waiting for our follow-up appt. to discuss. I am hoping that most of it was covered by our insurance, but we shall see. Alot of it will be out-of-pocket. The follow-up appts, even phone, are expensive, so we're going to try to just do one. It's crazy... here are the out-of-pocket costs for some of the Step 1 tests: Bloodwork- ??,Stool analysis- $169,(this is with insurance covering some) Urine casomorphine- $110, hair- $55, Nutreval- cost is $500 but I am hoping insurance will cover some of it, and Triad cost is around $900, but I am pretty sure insurance is going to cover a decent amount of that (I freakin hope so or Adam will have my head). So... as you can see, it's ALOT of money to do biomed and we're just going to have to be patient. And if I'm being honest, I think part of me is afraid to see what these sensitivities are going to be. I know someone who had well over 30 foods to avoid. I just don't know how that is going to happen. We shall see. I *think* I may have an idea of what caused the setback, because she really was doing great for a few weeks, but I won't know until that is removed from her diet for the next week or so. Thankfully, she is mostly eating good, nourishing foods, but fermented and GAPS diet... eh, not so much. XOXO
ReplyDeleteOh- and I did get some answers and input from Dr. Chelle yesterday which made me feel alot better about these occasional dietary infractions. :)
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