Friday, September 14, 2012
Food challenge
So... we decided to do a gluten and casein challenge, for two reasons. One... we're not sure if it's working, or how well it's working, if so. Our daughter has been gluten and casein-free for 2 months, and we've noticed SOME changes, but we're not sure if the changes are big enough to have her stick to the diet, or if the changes are in fact related to the diet at all. Two... in order to get an accurate reading on one of the tests the doctor wants to do, she has to have some gluten and casein in her system. Ummm... apparently I shouldn't have put off that particular test... my bad. This stuff can be VERY confusing. So... here we go. Today is her third day back on gluten, and tomorrow we will add in the casein again. She will basically eat whatever she wants for the next few days, with us being sure she has some dairy, and then we will go from there. If I'm being completely honest, I really do hope she can just eat what she wants (within reason). This is EXTREMELY hard on her, and in turn, it's extremely hard to watch for those of us who love her. This is supposedly an all or nothing diet, but I have to wonder, and most likely I will do this anyway... can I just do GFCF at home, and then school, birthday parties, etc., not put her through that emotional stuff? Maybe give her digestive enzymes when I can? I don't know. Behaviorally, yes, I hate to admit that things have been different yesterday and today. Yesterday I don't feel was an accurate picture because she had a horrible night's sleep, and that always has an effect on her behavior. To me, the real test is going to be next week at school. I have been so impressed with what I've seen at school and what the teachers have said, so if there is a big change next week, well... there's my answer, don't you think? As much as I'm going to hate to hear it. My babe's only 4, and as smart as she is, (she GETS it, but denies it) she just HATES it. It makes her cry and cry and obsess over what she can't have. And that did not get easier or change one bit after 8 weeks, and honestly, I don't think that WILL change. So there's a big social and emotional piece to this for us that can be just as difficult as some of the behaviors we are dealing with. But if this effects school and her ability to learn, listen, and socialize appropriately with her peers... we obviously have to go back to GFCF. What sucks about this is that she's going to have some time having food she really wants, and then possibly have to go back to NOT having it. She is not going to handle this well. Ugh. Wish us luck!!
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